Sharing your medical information
For a number of years, work has been ongoing to improve the way that medical records are made available to treating clinicians. Our main computer system is called SystmOne which has the advantage of enabling information to be shared between certain health professionals.
Enhanced Data Sharing Model (EDSM) enables us, with your consent, to share your medical records with those in the NHS who are involved in your care. By implied consent we share your medical records with other services treating you. This is known as 'sharing out'. Your express consent will be asked for and obtained where possible.NHS staff can only access shared information if they are involved in your care and being an electronic service an audit log is maintained showing when and who has accessed medical records.
EDSM should not be confused with care.data. EDSM only allows those treating the patient to access medical records. It does not enable patient records to be used for research or other purposes.
We already share records of children for child protection reasons and patients who are under the care of the District Nursing Team. This helps clinicians to make decisions based upon a wider knowledge of the patient and also helps to reduce the number of the number of times that patients or family members are asked the same question. In short it assists clinicians to provide more ‘joined up care’.
If I agree, who could see my records?
EDSM will allow clinicians treating you, who have access to SystmOne to view and in some cases update your medical records. Locally this includes the Walk-In-Centre, many departments at local hospitals (including A&E) and community services, such as the District Nursing Team. It is anticipated that over time more health services will be able to benefit from EDSM.
Clinicians outside of the surgery who wish to access your medical records will ask for your consent to do so and will need to have been issued with a NHS Smartcard. This is a ’chip and pin’ card -similar to a bank card.
Can I ‘opt out’ pick and choose who sees my record?
Yes, you can. Under EDSM there are two levels of consent. The first is to agree to sharing your medical records OUT. This is your agreement that records maintained by your GP can be seen, subject to your authority at the time, by clinicians working outside of the surgery. The second is agreeing to share your records IN. This means that your GP can see the records made by other health professionals who have access to EDSM.
However, as the treating clinician needs to ask your permission to see the records at the beginning of each period of care you are in control of who can see your medical information.
For example the diagram below shows that the patient has agreed to share his medical records with the District Nurse and the surgery. However, whilst he is happy for his GP to see notes made by the local smoking cessation adviser he doesn't want the adviser to have access to his other medical records.
I can see the benefits of the other people treating me seeing my notes, but what if there is a matter that I want to stay just between me and my doctor?
You can ask for any consultation to be marked as private, this means that viewing is restricted to the surgery, but allows the rest of the record to be viewed by whoever else is treating you. It is your responsibility to ask for a consultation to be marked as private.
Haven’t I agreed/disagreed to do this before?
EDSM may seem very similar to patients as the Summary Care Record which went live some years ago. The Summary Care Record contains only a very small part of your record that is available to be seen by clinicians who might be treating you in A E departments, Walk In Centres or if you register temporarily somewhere else within the UK.
The Summary Care Record allows other NHS Services to see your current medications and the drugs that you are allergic or sensitive to. Your Summary Care Record can be enriched by your GP to include information that it is important to pass on in the case of an emergency.
Can I change my mind?
Yes, you can always change your mind and amend who you consent to see your records. For instance you can decline to share your records out from the surgery, but if you built up a relationship with the physiotherapist who was treating you and they asked you if they could look at an x-ray report, you could give your consent at that point for them to view your records. You will be referred back to us to change your preference, so the physio treating won’t be able to see your records instantly, but should be able to by, the next time of your next appointment.
If I decline—what happens in an emergency?
In the event of a medical emergency, for instance if you were taken unconscious to A E, and the clinician treating you feels it is important to be able to see your medical records he is able to override any consents set.
However, the doctor has to give a written reason for doing so. Where this happens an audit is undertaken by the local Caldicott Guardian (the person with overall responsibility for Data Protection compliance).
Can anyone else see my medical records?
On a daily basis, we get requests from Insurance Companies to either have copies of medical records or excerpts from patients’ medical records. This requires your signed consent.
Occasionally we are asked for information from the medical records for legal reasons, again this has to be done with your written consent, or in very exceptional circumstances, by court order.
If you have any questions, please speak to reception. If necessary the receptionist will arrange for someone to give you a call. As EDSM has been designed to enhance patient care we will automatically ‘opt you in’ to both parts of the scheme.
If you prefer not to be then please mention it to a member of the reception team. You are free to change your mind at any time. Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care.
In July 2016, it was announced that the Care.Data scheme was to be scrapped.
This scheme was to link information from all the different places where you receive care, such as your GP, hospital and community service, to help provide a full picture. There were concerns over patient information being identifiable.
There is a new Central NHS Computer System called the Summary Care Record (SCR). It is an electronic record which contains information about the medicines you take, allergies you suffer from and any bad reactions to medicines you have had.
Summary Care Records
Why do I need a Summary Care Record?
Storing information in one place makes it easier for healthcare staff to treat you in an emergency, or when your GP practice is closed.
This information could make a difference to how a doctor decides to care for you, for example which medicines they choose to prescribe for you.
Who can see it?
Only healthcare staff involved in your care can see your Summary Care Record.
How do I know if I have one?
Over half of the population of England now have a Summary Care Record. You can find out whether Summary Care Records have come to your area by looking at our interactive map or by asking your GP
Do I have to have one?
No, it is not compulsory. If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery. You can use the form at the foot of this page.
For further information visit the NHS Care records website
Download the opt out form >>>>
Needs Profiling of 0-19 Year olds: How your NHS records are used
This practice is taking part in a new NHS service that helps your GP to spot whether more help is needed to manage children’s health. The service is called “needs profiling”.
Using information from your health records, a secure NHS computer system will look at any recent treatments children have had in the community or at this surgery, and any existing health conditions that they have, and alert the doctor to the likelihood of a possible future hospital admission. This may include screening service and technologies that help us search all of our patient’s records to identify patients that would most benefit from a particular treatment, sometimes by linking the information we hold with information about you from other organisations providing your care. The clinical team at the surgery will use the information to help patients get early care and treatment where it is needed.
The information will be seen only by qualified health workers involved in your care. NHS security systems will protect your health information and patient confidentiality at all times. If you don’t want your information being used in this way, or have any other concerns, please contact the Practice.
EDSM Allowed List
A list of trusted medical partners, surgeries and hospitals is being updated on a regular basis and used throughout the North Norfolk CCG. Below is a list of these pre-approved sharing partners.
Version 9 - Updated : 12/11/2018
|Unit Name:||Unit Type:|
|Anglia Community Eye Service - Cambridge||District Nurse Practice|
|Cambs Community Paediatrics||Community Primary Care Clinic|
|CCS Childrens Dietetics Service||District Nurse Practice|
|Children Looked After - Cambridgeshire||Community Primary Care Clinic|
|CHIS Kings Lynn||Child Health|
|CHIS Norfolk||Child Health|
|CHIS Suffolk||Child Health|
|Community Dentistry||District Nurse Practice|
|Continuing Healthcare||Community Services|
|CPFT MIU North Cambs Hospital||Out of Hours PCC|
|Ealing Hospital Outpatient Therapy Service||Community Services|
|Early Years Support Programme||Community Primary Care Clinic|
|East Anglia's Children's Hospices|| |
|East of England Ambulance Service NHS Trust||Acute Hospital|
|ECCH CFS / ME||Occupational Therapy|
|ECCH Children and Family||Health Visitor|
|ECCH Community Hospital ||Community Hospital|
|ECCH Community Nurses||District Nurse Practice|
|ECCH Continence ||Community Primary Care Clinic|
|ECCH Falls Service||District Nurse Practice|
|ECCH Infection Prevention and Control||Community Primary Care Clinic|
|ECCH Looked After Children||Community Services|
|ECCH LUTS||Community Services|
|ECCH Occupational Therapy||Occupational Therapy|
|ECCH Out of Hospital North||Community Primary Care Clinic|
|ECCH Out of Hospital South||Community Services|
|ECCH Podiatry Service||Podiatry|
|ECCH Primary Care and Prevention||Community Primary Care Clinic|
|ECCH Respiratory||Community Services|
|ECCH SaLT CYP||Community Primary Care Clinic|
|ECCH Speech and Language||Speech Therapy Group|
|ECCH TB Service||Community Services|
|ECCH Wheelchair Services||Community Services|
|Family Nurse Partnership - CHIS Fenland||Child Health|
|HCP East Cambs and Fenland||District Nurse Practice|
|Imms and Vacs - Suffolk - CCS Screening Unit||Health Visitor|
|Ipswich Hospital NHS Trust||Acute Hospital|
|James Paget University Hospitals NHS Foundation Trust - EPR Core||Acute Hospital|
|Luton & Dunstable Hospital NHS Foundation Trust||Acute Hospital|
|MASH - CCS||Community Services|
|NCHC Childrens Centres||Community Services|
|NCHC Childrens Health Services||District Nurse Practice|
|NCHC Community Nursing and Therapy||District Nurse Practice|
|NCHC Early Supported Discharge Suffolk||District Nurse Practice|
|NCHC Infectious Waste Disposal||District Nurse Practice|
|NCHC Integrated Therapy Partnership||Community Services|
|NCHC Looked After Children||Community Primary Care Clinic|
|NCHC Matrix||District Nurse Practice|
|NCHC Multi-Disciplinary Community Services||District Nurse Practice|
|NCHC Norfolk Community IV Therapy||Community Services|
|NCHC Norfolk Continence Assess and Treat||District Nurse Practice|
|NCHC Norfolk Out of Hours Nursing||Community Services|
|NCHC Norfolk Stroke Early Supported Discharge for Stroke||Community Services|
|NCHC North Norfolk Community Services||Community Services|
|NCHC Norwich Community Services||Community Services|
|NCHC Norwich HomeWard||Community Services|
|NCHC Safeguarding||Community Services|
|NCHC South Norfolk Community Services||Community Services|
|NCHC Southern Locality||District Nurse Practice|
|NCHC Specialist Palliative Care PBC||Palliative Hospital|
|NCHC Specialist Services||District Nurse Practice|
|NCHC Specialist Therapy Services||Community Primary Care Clinic|
|NCHC West Integrated Palliative Care||Palliative Hospital|
|NCHC West Norfolk Community Services||Community Services|
|Norfolk and Norwich University Hospital||Acute Hospital|
|Norfolk and Suffolk NHS Foundation Trust CRV||Acute Hospital|
|Norfolk Continuing Care Partnership (CHC)||Standard|
|Norfolk Healthy Child Programme - Breckland||Health Visitor|
|Norfolk Healthy Child Programme - City||Health Visitor|
|Norfolk Healthy Child Programme - East||Health Visitor|
|Norfolk Healthy Child Programme - North||Health Visitor|
|Norfolk Healthy Child Programme - South||Health Visitor|
|Norfolk Healthy Child Programme - West||Health Visitor|
|Nutrition and Dietetics - James Paget Healthcare||Dietetics|
|Paediatric SALT - Cambridge||District Nurse Practice|
|Palliative Care Team - James Paget Healthcare||District Nurse Practice|
|Peterborough and Stamford Hospitals NHS Foundation Trust - EPR Core||Acute Hospital|
|Queen Elizabeth Hospital King's Lynn NHS Trust CRV||Acute Hospital|
|South Norfolk Healthcare CIC RMS||Community Services|
|Suffolk MASH Unit||Health Visitor|
|The South Norfolk Vasectomy Service||Community Services|
|West Norfolk MacMillan||Palliative Hospital|
|West Suffolk Hospital NHS Trust - CRV||Acute Hospital|
|West Suffolk HV/SN Team||Health Visitor|
|NCHC (AHPS) Musculoskeletal West Triage||Community Services|
|Norwich Practices Health Centre||General Practice|
|East Suffolk HV/SN Team||Health Visitor|
|Wymondham Medical Partnership - microsuction||General Practice|
|St James Medical Practice - St Nicholas Endoscopy Unit||General Practice|
|St Stephens Gate - Surgical, Orthopaedic, Dermatological, Urological, Opthalmic||General Practice|
|Bowthorpe Care Village - Care Home (North Care Ltd.)||General Practice|
|The Fakenham Medical Centre - Minor Surgery||General Practice|
|Oak Street Medical Practice - Vasectomy||General Practice|
|ECCH Musculoskeletal Triage Service ||Community Primary Care Clinic|
|City Reach||General Practice|
|St Nicholas Hospice Care||Palliative Hospital|
|Coastal Health GP Provider Organisation||GP HUB|
|West Norfolk Health GP HUB||GP HUB|
|North Norfolk Primary Care Ltd.||GP HUB|
|BOC Healthcare South||Community Primary Care Clinic|
|Norwich/NPL Improved Access HUB||GP HUB|
|Suffolk Children in Care||Health Visitor - Early Help Team Children & Young People Services|
|Suffolk Children's Services - Paediatrics East||Health Visitor - Early Help Team Children & Young People Services |
|Suffolk Children's Services - Paediatrics West||Health Visitor - Early Help Team Children & Young People Services |
|Suffolk SALT - Paediatrics||Speech Therapy Group|
|Suffolk SALT Communication Aids||Speech Therapy Group|
|Suffolk CCNT||Health Visitor|
|Suffolk Children's Audiology||Health Visitor|
|Suffolk Children's Audiology West||Health Visitor|
|Suffolk Paediatric Physio||Physiotherapy|
|Suffolk Paediatric OT||Occupational Therapy|
|Suffolk CDC East||Occupational Therapy|
|Suffolk Community Clinical Psychology Service||Health Visitor|