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Sharing your data

Sharing your medical information

Background

For a number of years, work has been ongoing to improve the way that medical records are made available to treating clinicians. Our main computer system is called SystmOne which has the advantage of enabling information to be shared between certain health professionals.

 

Enhanced Data Sharing Model (EDSM) enables us, with your consent, to share your medical records with those in the NHS who are involved in your care. By implied consent we share your medical records with other services treating you. This is known as 'sharing out'. Your express consent will be asked for and obtained where possible.NHS staff can only access shared information if they are involved in your care and being an electronic service an audit log is maintained showing when and who has accessed medical records.

EDSM should not be confused with care.data. EDSM only allows those treating the patient to access  medical records. It does not enable patient records to be used for research or other purposes.

We already share records of children for child protection reasons and patients who are under the care of the District Nursing Team.  This helps clinicians to make decisions based upon a wider knowledge of the patient and also helps to reduce the number of the number of times that  patients or family members are asked the same question. In short it assists clinicians to provide more ‘joined up care’.

 

If I agree, who could see my records?

EDSM will allow clinicians treating you, who have access to SystmOne to view and in some cases update your medical records. Locally this includes the Walk-In-Centre, many departments at local hospitals (including A&E) and community services, such as the District Nursing Team. It is anticipated that over time more health services will be able to benefit from EDSM.

Clinicians outside of the surgery who wish to access your medical records will ask for your consent to do so and will need to have been issued with a NHS Smartcard. This is a ’chip and pin’ card -similar to a bank card.

Can I ‘opt out’ pick and choose who sees my record?

Yes, you can. Under EDSM there are two levels of consent. The first is to agree to sharing your medical records OUT.  This is your agreement that records maintained by your GP can be seen, subject to your authority at the time, by clinicians working outside of the surgery. The second is agreeing to share your records IN. This means that your GP can see the records made by other health professionals who have access to EDSM.

However, as the treating clinician needs to ask your permission to see the records at the beginning of each period of care you are in control of who can see your medical information.  

For example the diagram below shows that the patient has agreed to share his medical records with the District Nurse and the surgery. However, whilst he is happy for his GP to see notes made by the local smoking cessation adviser he doesn't want the adviser to have access to his other medical records.

I can see the benefits of the other people treating me seeing my notes, but what if there is a matter that I want to stay just between me and my doctor?

You can ask for any consultation to be marked as private, this means that viewing is restricted to the surgery, but allows the rest of the record to be viewed by whoever else is treating you.  It is your responsibility to ask for a consultation to be marked as private.

Haven’t I agreed/disagreed to do this before?

EDSM may seem very similar to patients as the Summary Care Record which went live some years ago.  The Summary Care Record contains only a very small part of your record that is available to be seen by clinicians who might be treating you in A E departments, Walk In Centres or if you register temporarily somewhere else within the UK.

The Summary Care Record allows other NHS Services to see your current medications and the drugs that you are allergic or sensitive to.  Your Summary Care Record can be enriched by your GP to include information that it is important to pass on in the case of an emergency.

Can I change my mind?

Yes, you can always change your mind and amend who you consent to see your records.  For instance you can decline to share your records out from the surgery, but if you built up a relationship with the physiotherapist who was treating you and they asked you if they could look at an x-ray report, you could give your consent at that point for them to view your records.  You will be referred back to us to change your preference, so the physio treating won’t be able to see your records instantly, but should be able to by, the next time of your next appointment.

If I decline—what happens in an emergency?

In the event of a medical emergency, for instance if you were taken unconscious to A E, and the clinician treating you feels it is important to be able to see your medical records he is able to override any consents set.
However, the doctor has to give a written reason for doing so.  Where this happens an audit is undertaken by the local Caldicott Guardian (the person with overall responsibility for Data Protection compliance).

Can anyone else see my medical records?

On a daily basis, we get requests from Insurance Companies to either have copies of medical records or  excerpts from patients’ medical records.  This requires your signed consent.  

Occasionally we are asked for information from the medical records for legal reasons, again this has to be done with your written consent, or in very exceptional circumstances, by court order.

Any questions?

If you have any questions, please speak to reception. If necessary the receptionist will arrange for someone to give you a call. As EDSM has been designed to enhance patient care we will automatically ‘opt you in’ to both parts of the scheme.

If you prefer not to be then please mention it to a member of the reception team. You are free to change your mind at any time. Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care.

Care.Data

In July 2016, it was announced that the Care.Data scheme was to be scrapped.

 

This scheme was to link information from all the different places where you receive care, such as your GP, hospital and community service, to help provide a full picture. There were concerns over patient information being identifiable.

 

There is a new Central NHS Computer System called the Summary Care Record (SCR). It is an electronic record which contains information about the medicines you take, allergies you suffer from and any bad reactions to medicines you have had.

Summary Care Records

 

Why do I need a Summary Care Record?

Storing information in one place makes it easier for healthcare staff to treat you in an emergency, or when your GP practice is closed.

This information could make a difference to how a doctor decides to care for you, for example which medicines they choose to prescribe for you.

Who can see it?

Only healthcare staff involved in your care can see your Summary Care Record. 

 

How do I know if I have one?

Over half of the population of England now have a Summary Care Record. You can find out whether Summary Care Records have come to your area by looking at our interactive map or by asking your GP

Do I have to have one?

No, it is not compulsory. If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery. You can use the form at the foot of this page.

More Information

For further information visit the NHS Care records website

Subscribe to the newsletterDownload the opt out form >>>>

Needs Profiling of 0-19 Year olds: How your NHS records are used

 

This practice is taking part in a new NHS service that helps your GP to spot whether more help is needed to manage children’s health. The service is called “needs profiling”.

 

Using information from your health records, a secure NHS computer system will look at any recent treatments children have had in the community or at this surgery, and any existing health conditions that they have, and alert the doctor to the likelihood of a possible future hospital admission. This may include screening service and technologies that help us search all of our patient’s records to identify patients that would most benefit from a particular treatment, sometimes by linking the information we hold with information about you from other organisations providing your care. The clinical team at the surgery will use the information to help patients get early care and treatment where it is needed.

 

The information will be seen only by qualified health workers involved in your care. NHS security systems will protect your health information and patient confidentiality at all times. If you don’t want your information being used in this way, or have any other concerns, please contact the Practice.

EDSM Allowed List

A list of trusted medical partners, surgeries and hospitals is being updated on a regular basis and used throughout the North Norfolk CCG.  Below is a list of these pre-approved sharing partners.

Version 9 - Updated : 12/11/2018

Unit Name:Unit Type:
Anglia Community Eye Service - CambridgeDistrict Nurse Practice
Cambs Community PaediatricsCommunity Primary Care Clinic
CCS Childrens Dietetics ServiceDistrict Nurse Practice
Children Looked After - CambridgeshireCommunity Primary Care Clinic
CHIS Kings LynnChild Health
CHIS NorfolkChild Health
CHIS SuffolkChild Health
Community DentistryDistrict Nurse Practice
Continuing HealthcareCommunity Services
CPFT MIU North Cambs HospitalOut of Hours PCC
Ealing Hospital Outpatient Therapy ServiceCommunity Services
Early Years Support ProgrammeCommunity Primary Care Clinic
East Anglia's Children's Hospices 
East of England Ambulance Service NHS TrustAcute Hospital
ECCH CFS / MEOccupational Therapy
ECCH Children and FamilyHealth Visitor
ECCH Community Hospital Community Hospital
ECCH Community NursesDistrict Nurse Practice
ECCH Continence Community Primary Care Clinic
ECCH Falls ServiceDistrict Nurse Practice
ECCH Infection Prevention and ControlCommunity Primary Care Clinic
ECCH Looked After ChildrenCommunity Services
ECCH LUTSCommunity Services
ECCH Occupational TherapyOccupational Therapy
ECCH Out of Hospital NorthCommunity Primary Care Clinic
ECCH Out of Hospital SouthCommunity Services
ECCH PhysiotherapyPhysiotherapy
ECCH Podiatry ServicePodiatry
ECCH Primary Care and PreventionCommunity Primary Care Clinic
ECCH RespiratoryCommunity Services
ECCH SaLT CYPCommunity Primary Care Clinic
ECCH Speech and LanguageSpeech Therapy Group
ECCH TB ServiceCommunity Services
ECCH Wheelchair ServicesCommunity Services
Family Nurse Partnership - CHIS FenlandChild Health
HCP East Cambs and FenlandDistrict Nurse Practice
HMP BurePrison
HMP NorwichPrison
HMP WaylandPrison
Imms and Vacs - Suffolk - CCS Screening UnitHealth Visitor
Ipswich Hospital NHS TrustAcute Hospital
James Paget University Hospitals NHS Foundation Trust - EPR CoreAcute Hospital
Luton & Dunstable Hospital NHS Foundation TrustAcute Hospital
MASH - CCSCommunity Services
NCHC Childrens CentresCommunity Services
NCHC Childrens Health ServicesDistrict Nurse Practice
NCHC Community Nursing and TherapyDistrict Nurse Practice
NCHC Early Supported Discharge SuffolkDistrict Nurse Practice
NCHC Infectious Waste DisposalDistrict Nurse Practice
NCHC Integrated Therapy PartnershipCommunity Services
NCHC Looked After ChildrenCommunity Primary Care Clinic
NCHC MatrixDistrict Nurse Practice
NCHC Multi-Disciplinary Community ServicesDistrict Nurse Practice
NCHC Norfolk Community IV TherapyCommunity Services
NCHC Norfolk Continence Assess and TreatDistrict Nurse Practice
NCHC Norfolk Out of Hours NursingCommunity Services
NCHC Norfolk Stroke Early Supported Discharge for StrokeCommunity Services
NCHC North Norfolk Community ServicesCommunity Services
NCHC Norwich Community ServicesCommunity Services
NCHC Norwich HomeWardCommunity Services
NCHC SafeguardingCommunity Services
NCHC South Norfolk Community ServicesCommunity Services
NCHC Southern LocalityDistrict Nurse Practice
NCHC Specialist Palliative Care PBCPalliative Hospital
NCHC Specialist ServicesDistrict Nurse Practice
NCHC Specialist Therapy ServicesCommunity Primary Care Clinic
NCHC West Integrated Palliative CarePalliative Hospital
NCHC West Norfolk Community ServicesCommunity Services
Norfolk and Norwich University HospitalAcute Hospital
Norfolk and Suffolk NHS Foundation Trust CRVAcute Hospital
Norfolk Continuing Care Partnership (CHC)Standard
Norfolk Healthy Child Programme - BrecklandHealth Visitor
Norfolk Healthy Child Programme - CityHealth Visitor
Norfolk Healthy Child Programme - EastHealth Visitor
Norfolk Healthy Child Programme - NorthHealth Visitor
Norfolk Healthy Child Programme - SouthHealth Visitor
Norfolk Healthy Child Programme - WestHealth Visitor
Nutrition and Dietetics - James Paget HealthcareDietetics
Paediatric SALT - CambridgeDistrict Nurse Practice
Palliative Care Team - James Paget HealthcareDistrict Nurse Practice
Peterborough and Stamford Hospitals NHS Foundation Trust - EPR CoreAcute Hospital
Queen Elizabeth Hospital King's Lynn NHS Trust CRVAcute Hospital
South Norfolk Healthcare CIC RMSCommunity Services
Suffolk MASH UnitHealth Visitor
The South Norfolk Vasectomy ServiceCommunity Services
West Norfolk MacMillanPalliative Hospital
West Suffolk Hospital NHS Trust - CRVAcute Hospital
West Suffolk HV/SN TeamHealth Visitor
NCHC (AHPS) Musculoskeletal West TriageCommunity Services
Norwich Practices Health CentreGeneral Practice
East Suffolk HV/SN TeamHealth Visitor
Wymondham Medical Partnership - microsuctionGeneral Practice
St James Medical Practice - St Nicholas Endoscopy UnitGeneral Practice
St Stephens Gate - Surgical, Orthopaedic, Dermatological, Urological, OpthalmicGeneral Practice
Bowthorpe Care Village - Care Home (North Care Ltd.)General Practice
The Fakenham Medical Centre - Minor SurgeryGeneral Practice
Oak Street Medical Practice - VasectomyGeneral Practice
ECCH Musculoskeletal Triage Service Community Primary Care Clinic
City ReachGeneral Practice
St Nicholas Hospice CarePalliative Hospital
Coastal Health GP Provider OrganisationGP HUB
West Norfolk Health GP HUBGP HUB
North Norfolk Primary Care Ltd.GP HUB
BOC Healthcare SouthCommunity Primary Care Clinic
Norwich/NPL Improved Access HUBGP HUB
Suffolk Children in CareHealth Visitor - Early Help Team Children & Young People Services
Suffolk Children's Services - Paediatrics EastHealth Visitor - Early Help Team Children & Young People Services 
Suffolk Children's Services - Paediatrics WestHealth Visitor - Early Help Team Children & Young People Services 
Suffolk SALT - PaediatricsSpeech Therapy Group
Suffolk SALT Communication AidsSpeech Therapy Group
Suffolk CCNTHealth Visitor
Suffolk Children's AudiologyHealth Visitor
Suffolk Children's Audiology WestHealth Visitor
Suffolk Paediatric PhysioPhysiotherapy
Suffolk Paediatric OTOccupational Therapy
Suffolk CDC EastOccupational Therapy
Suffolk Community Clinical Psychology ServiceHealth Visitor



 
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